From Anecdotal to Actionable: The Case for Patient Perspective Data

Published: November 2015

To define and scale effective patient engagement requires a paradigm shift, one that is already beginning. Borrowing methods from the fields of health economics, marketing, and engineering, a new science of patient input has emerged, embracing data as a means for measuring patient-centered outcomes and quantifying patient preferences. This paper presents a model for advancing the collection and application of Patient Perspective Data, along with initial ideas for how such data might inform drug development and regulatory processes.