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Source: PatientsLikeMe

This online library aims to help users find a variety of annotated resources about patient engagement to help them launch patient-centered efforts, enhance existing programs or identify where more work is needed. To suggest an item to be included, contact Taylor Cusher of FasterCures here.

Measuring What Matters to Patients: Innovations in Integrating the Patient Experience into Development of Meaningful Performance Measures

PatientsLikeMe, National Quality Forum

The Robert Wood Johnson Foundation (RWJF) funded PatientsLikeMe® in partnership with the National Quality Forum (NQF) to evaluate the novel...

Patient-reported outcomes

Publications & Talks


This page links to all peer-reviewed publications, presentations, and featured research produced by PatientsLikeMe.

Patient-reported outcomes Patient preference Patient focused drug development

PatientsLikeMe Health Data-Sharing Platform


PatientsLikeMe has developed a proprietary online network that includes more than 400,000 people living with more than 2500 conditions, sharing...

Patient organizations