Back to Resource Library

Source: NORD

This online library aims to help users find a variety of annotated resources about patient engagement to help them launch patient-centered efforts, enhance existing programs or identify where more work is needed. To suggest an item to be included, contact Taylor Cusher of FasterCures here.

Natural Histories Patient Registry Platform


This platform houses several natural history patient registries to help address the unique needs of researchers and stakeholders developing treatments...

Patient organizations