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Source: Everylife Foundation

This online library aims to help users find a variety of annotated resources about patient engagement to help them launch patient-centered efforts, enhance existing programs or identify where more work is needed. To suggest an item to be included, contact Taylor Cusher of FasterCures here.

Patients as Critical Partners in Rare Disease Development

Everylife Foundation

This framework outlines opportunities to engage patients in the development and delivery of therapies for rare diseases. (September 2015)

Patient organizations Patient focused drug development