Source: BioPontis Alliance for Rare Diseases
This online library aims to help users find a variety of annotated resources about patient engagement to help them launch patient-centered efforts, enhance existing programs or identify where more work is needed. To suggest an item to be included, contact Taylor Cusher of FasterCures here.
Integrating Rare Disease Patients into Pre-Clinical Therapy Development; Finding our Way with Patient Input
This white paper reports on a 2016 workshop held to define methods and practices to enable integration of patients into...