Measuring What Matters to Patients: Innovations in Integrating the Patient Experience into Development of Meaningful Performance Measures

PatientsLikeMe, National Quality Forum

The Robert Wood Johnson Foundation (RWJF) funded PatientsLikeMe® in partnership with the National Quality Forum (NQF) to evaluate the novel...

Patient-reported outcomes

Assessing the Financial Value of Patient Engagement

Clinical Trials Transformation Initiative (CTTI)

CTTI evaluated the impact of patient engagement on expected net present value (ENPV) of a typical oncology development program to...

Clinical trials

Patient Engagement Study


The executive summary and study results of a DIA effort to capture the value of patient engagement.

Capturing the Value of Patient Engagement: Summary of Results of the 2016 Study Quantifying the Adoption and Impact of Patient-Centric Initiatives


Results of a 2016 study of 22 biopharmaceutical companies' initiatives to engage patients and patient organizations across a wide variety...

Clinical trials

Patient Engagement Rubric & Evaluation Framework


The Evaluation Framework attempts to capture questions about PCORI's goals and the methods used to achieve those goals, as well...


Managing performance in patient-centricity


This white paper discusses how pharmaceutical companies can balance investments in patient centricity while creating patient value, driving innovation, and...