From Aspiration to Application: 5 Years of Patient-Centricity


FasterCures has mapped nearly 100 multi-stakeholder initiatives producing frameworks, methods, toolkits, draft regulatory guidances, training programs, and case studies.

Patient organizations

Beginners Guide to Patient Centricity


This guide highlights key resources for people interested in learning more about ways to engage patients as partners in biomedical...


Information Center for Clinical Trial Participation

Center for Information and Study on Clinical Trial Participation (CISCRP)

CISCRP's Education Center provides resources to help individuals learn about clinical research and what it means to be a clinical...

Guidance documents on patient involvement in R&D

European Patients' Academy on Therapeutic Innovation

The European Patients' Academy (EUPATI) guidance documents support the integration of patient involvement across R&D.

FDA and the Rise of the Empowered Consumer

Kenan Institute for Ethics at Duke University

This paper traces the origins of the consumer and patient engagement through cultural, scientific, and technology changes from the 1960s...

Expanding the Science of Patient Input: The Power of Language


Language matters. At a February 2016 workshop of leaders committed to expanding patient engagement hosted by FasterCures, just 22 percent felt...

Patient organizations Taxonomy

Dialogue / Advancing Meaningful Patient Engagement in Research, Development, and Review of Drugs

National Health Council and Genetic Alliance

This paper summarizes recommendations generated during a 2015 workshop   attended by stakeholders from across sectors, including government, patient organizations,...

Clinical trials Patient organizations Patient focused drug development Training

The Universal Patient Language

Bristol-Myers Squibb

The Universal Patient Language tool was created to help organizations communicate clearly and effectively with patients on a variety of...

Taxonomy Training

Capitalizing on patient insights


This white paper puts forth a five-step approach to evaluate, build, and embed organizational capacity to realize the value of...


Incorporating Patient Preferences into Product Development and Value Communication: Why, When, and How?


This article summarizes recent developments in the use of patient preference  in decision making, the implications for evidence generation planning...

Patient preference Training

Patient engagement: Pharma’s strategy for success in the New Health Economy


This publication aims to guide the pharmaceutical industry in the patient engagement space, as companies adjust the way they develop,...


Patient centricity vs. Profitability – why commercial innovation is key

Eye for Pharma

This paper includes opinions from industry experts on finding the "sweet spot" where patient focus and business focus are balanced...


From passengers to co-pilots: Patient roles expand

Science Translational Medicine

FasterCures' Margaret Anderson and Kim McCleary explore the early foundations of patient engagement, where it occurs in the drug-development pipeline,...


On the path to a science of patient input

Science Translational Medicine

FasterCures' Margaret Anderson and Kim McCleary tracked more than 70 collaborative initiatives clustered in six categories that are defining and...


Channeling the power of the "P" in patient-centricity


In this plenary session at Partnering for Cures, a panel of experts describes approaches to building a new science of...


Advancing the Science of Patient Input


A short animated video describing the evolution of patients' roles from passengers to co-pilots in biomedical research over the past century.

Training Events