Publications & Talks


This page links to all peer-reviewed publications, presentations, and featured research produced by PatientsLikeMe.

Patient-reported outcomes Patient preference Patient focused drug development

Health Preference Study and Technology Registry

International Academy of Health Preference Research is a web-based resource that provides patients, their family members, health care professionals, researchers, and the general population with...

Patient preference

Voices of Engagement


Patients, caregivers, researchers, clinicians, employers, insurers, and others talk about working side by side to answer real-world questions critical to...


A short guide to successful patient involvement in EU-funded research

Innovative Medicines Initiative

A practical guide on how to involve patients across all stages of healthcare research aimed at people writing applications for...

Clinical trials Patient organizations Patient focused drug development