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Disease Research and Advocacy Organizations
Accelerated Cure Project for Multiple Sclerosis
The Accelerated Cure Project (formerly known as the Boston Cure Project) is a national nonprofit dedicated to curing MS by determining its causes. Its main activities are the creation of a Cure Map to logically and systematically analyze the possible causes of the disease and the research that has been done to date on MS; and a Large Scale, Multidisciplinary, MS Sample Repository.
Alliance for Aging Research
A national nonprofit organization dedicated to supporting and accelerating the pace of medical discoveries to vastly improve the universal human experience of aging and health.
Alliance for Lupus Research
The mission of the ALR is to support research into the cause, cure, treatment, and prevention of systemic lupus erythematosus and its complications.
Alpha-1 Foundation
The Alpha-1 Foundation is dedicated to providing the leadership and resources that will result in increased research, improved health, worldwide detection, and a cure for Alpha-1 Antitrypsin Deficiency (Alpha-1). Alpha-1 is a genetic disorder that can cause liver and lung disease in children and adults.
ALS Therapy Development Institute
ALS TDF is a nonprofit biotechnology company discovering and developing treatments for patients affected by ALS.
Lance Armstrong Foundation
Founded in 1997 by cancer survivor and champion cyclist, Lance Armstrong, the LAF provides the practical information and tools people living with cancer need to live strong. It serves its mission through education, advocacy, public health, and research programs.
C-Change
C-Change is comprised of the nation's key cancer leaders from government, business, and nonprofit sectors, such as former President George Bush and Senator Dianne Feinstein. It is both a forum and a catalyst for identifying issues and major challenges facing the cancer community and for initiating collaborative actions to complement the efforts of individual C-Change members.
Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation is to assure the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease. It supports and accredits 117 care centers nationwide, provides grants to scientists conducting CF research, funding its own network of CF research centers, and has created a nonprofit drug discovery and development affiliate.
Education Network to Advance Cancer Clinical Trials
The mission of ENACCT is to identify and implement innovative approaches to cancer clinical trials education, outreach, and recruitment to improve outcomes for cancer patients.
Michael J. Fox Foundation for Parkinson's Research
The Michael J. Fox Foundation for Parkinson's Research is dedicated to ensuring the development of a cure for Parkinson's disease within this decade through an aggressively funded research agenda.
Epilepsy Therapy Development Foundation
The mission of the Epilepsy Therapy Development Foundation is to improve the lives of people with epilepsy by supporting the research and development on more effective therapies and by serving as a catalyst for moving new therapies from the lab to the patient.
Hereditary Disease Foundation
Formed in 1968, HDF was responsible for spearheading the Venezuela Collaborative Huntington"s Disease Project, which led to the identification of a genetic marker for HD in 1983, and the HD Collaborative Research Group, which identified the gene for HD in 1993.
Institute for OneWorld Health
A nonprofit pharmaceutical company that directs a worldwide effort to uncover, research, and develop new medicines for neglected infectious diseases of the developing world, such as visceral leishmaniasis, malaria, schistosomiasis, and diarrheal and chagas disease.
Juvenile Diabetes Research Foundation
JDRF is organized as a diabetes cure enterprise, with a unique research management process. It takes informed risks, continuously monitors the global diabetes research landscape, and makes research investments strategically, to ensure that resources are effectively directed to research with the greatest impact leading to a cure as soon as possible.
Susan G. Komen Breast Cancer Foundation
For more than 20 years, the Susan G. Komen Breast Cancer Foundation has been a global leader in the fight against breast cancer through its support of innovative research and community-based outreach programs. Working through a network of U.S. and international Affiliates and events like the Komen Race for the Cure®, the Komen Foundation is fighting to eradicate breast cancer as a life-threatening disease by funding research grants and supporting education, screening, and treatment projects in communities around the world.
Dr. Susan Love Research Foundation
The Foundation aims to eradicate breast cancer by identifying the most effective research paths, determining the barriers to research, and re-evaluating the breast cancer funding approaches and priorities.
Multiple Myeloma Research Foundation
To date, the MMRF has raised more than $43 million to fund 51 laboratories worldwide. MMRF channels 94% of dollars raised into supporting the most cutting-edge myeloma research worldwide. This investment has already resulted in significant advances in the field of myeloma, including pivotal research that contributed to the recent approval of the first myeloma drug in more than a decade.
Multiple Myeloma Research Consortium
MMRF created the MMRC, a nonprofit organization that integrates leading academic institutions with the goal of accelerating drug development in multiple myeloma. MMRC research efforts will be conducted in three critical areas of myeloma—genomics, target validation, and clinical trials — and will remain highly integrated through advanced infrastructures.
Myelin Repair Foundation
The mission of the Myelin Repair Foundation is to develop rational drug targets to slow, stop, and ultimately repair damage to myelin caused by multiple sclerosis. It set a time horizon of five years to develop candidate treatments and fifteen years to bring these treatments to market.
Pacific Vascular Research Foundation
PVRF works to prevent death and disability from vascular disease by supporting breakthrough research into the causes and treatment of targeted vascular diseases, educating vascular surgeons, other specialists, physicians, and patients, and raising public awareness of the significant but under-appreciated risks of vascular diseases.
Parkinson's Action Network
Founded in 1991, PAN is the unified education and advocacy voice of the Parkinson's community – more than one million Americans and their families. Through education and interaction with the Parkinson' s community, scientists, lawmakers, opinion leaders, and the public, PAN leads the fight to ease the burden and find a cure. PAN increases awareness about Parkinson's disease and seeks federal support for Parkinson's research.
Project ALS
Project A.L.S. is dedicated to finding a cure for A.L.S., finding an effective treatment for people living with A.L.S., and raising awareness about A.L.S. Current cutting-edge projects include gene chip discovery, accelerated drug testing, and neural stem cell replacement.
Prostate Cancer Foundation
PCF is the world"s largest philanthropic source of support for prostate cancer research, having raised more than $210 million and provided funding for research to more than 1,100 researchers at 100 institutions worldwide. PCF follows a venture capital model of philanthropic investing, providing initial funding for high-impact, early-stage research projects that offer great hope for new treatments of better understanding of the disease.
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