Health Citizenship

Health Citizenship iconCitizenship implies a set of rights and responsibilities for both the individual and the state – a social contract. During the course of interviews with more than 150 thought leaders as part of our Rx for Innovation project, FasterCures identified a desire for a similar social contract between individuals and the biomedical research and health-care systems, which we call #HealthCitizenship.

In medical research and health care, we will all be patients one day and have a vested interest in moving innovation forward. #HealthCitizenship requires a more knowledgeable participant population, and having control over personal health data is one way to put people in a better position to actively engage with their doctors and monitor and track their health and well-being.

We need to make sure that the social contract of #HealthCitizenship is a two-way street – people get engaged, and the system works to make it easier for them to do so. For example, a perennial challenge to medical product development is the recruitment of participants into clinical trials, and their retention once the trial has begun. While individuals have a responsibility to seek out trials, trial sponsors have a responsibility to actively engage with participants to ensure that the trials are designed to study what is most important medically to participants, to be as user-friendly as possible so that participants are able to remain enrolled for the duration and to return meaningful results to participants.

The goals of the #HealthCitizenship movement are to:

  1. Increase public engagement in biomedical innovation and health care.
  2. Advocate for the individual’s rights within this engagement.
  3. Establish the responsibilities of the system’s institutions (e.g., biopharmaceutical companies, universities, health-care providers).

To achieve these goals, FasterCures will:

  • Educate all stakeholders about the roadblocks and opportunities for #HealthCitizenship across the system, with a particular focus on those approaches that use patient input
  • Partner with other stakeholders, including patient-based organizations and industry, to identify pilot projects and/or case examples of #HealthCitizenship
  • Advocate for more patient control over their health data

Learn more about the #HealthCitizenship movement: