Tag: Patient-reported outcomes
This online library aims to help users find a variety of annotated resources about patient engagement to help them launch patient-centered efforts, enhance existing programs or identify where more work is needed. To suggest an item to be included, contact Taylor Cusher of FasterCures here.
The National Quality Forum (NQF), with funding from the Department of Health and Human Services, brought together a diverse set...
Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Clinical Trials: An ISPOR COA Emerging Good Practices Task Force Report
This paper identifies emerging good practices for using patient-reported and observer-reported outcomes in rare disease outcomes research.
This guide was developed to help researchers, clinicians, etc. incorporate and optimize patient-reported outcomes in electronic health records. (May 2017)
Five principles for patient-centered measurement were developed with input from a multidisciplinary group of stakeholders.
Information about a patient-reported outcome measurement system developed by the National Cancer Institute to capture symptomatic adverse events in patients...