Tag: Patient-reported outcomes
This online library aims to help users find a variety of annotated resources about patient engagement to help them launch patient-centered efforts, enhance existing programs or identify where more work is needed. To suggest an item to be included, contact Taylor Cusher of FasterCures here.
Measuring What Matters to Patients: Innovations in Integrating the Patient Experience into Development of Meaningful Performance Measures
The Robert Wood Johnson Foundation (RWJF) funded PatientsLikeMe® in partnership with the National Quality Forum (NQF) to evaluate the novel...
The National Quality Forum (NQF), with funding from the Department of Health and Human Services, brought together a diverse set...
Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Clinical Trials: An ISPOR COA Emerging Good Practices Task Force Report
This paper identifies emerging good practices for using patient-reported and observer-reported outcomes in rare disease outcomes research.
This guide was developed to help researchers, clinicians, etc. incorporate and optimize patient-reported outcomes in electronic health records. (May 2017)
Five principles for patient-centered measurement were developed with input from a multidisciplinary group of stakeholders.
Information about a patient-reported outcome measurement system developed by the National Cancer Institute to capture symptomatic adverse events in patients...