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Source: PCORI

This online library aims to help users find a variety of annotated resources about patient engagement to help them launch patient-centered efforts, enhance existing programs or identify where more work is needed. To suggest an item to be included, contact Taylor Cusher of FasterCures here.


Users’ Guide to Integrating Patient-Reported Outcomes in Electronic Health Records

PCORI

This guide was developed to help researchers, clinicians, etc. incorporate and optimize patient-reported outcomes in electronic health records. (May 2017)


Patient-reported outcomes PCORI

The PCORI Engagement Rubric: Promising Practices for Partnering in Research

PCORI

The Rubric provides a framework for operationalizing engagement to incorporate patients and other stakeholders in all phases of research.


Comparative effectiveness research

Voices of Engagement

PCORI

Patients, caregivers, researchers, clinicians, employers, insurers, and others talk about working side by side to answer real-world questions critical to...


PCORI

Patient Engagement Rubric & Evaluation Framework

PCORI

The Evaluation Framework attempts to capture questions about PCORI's goals and the methods used to achieve those goals, as well...


PCORI

PCORI Ambassadors Program

PCORI

This program aims to help train volunteers to share PCORI's mission of "research done differently" through patient-centricity with the ambassador's community.


Patient organizations PCORI Training

PCORnet: The National Patient-Centered Clinical Research Network

PCORI

Through PCORnet, PCORI has created a “network of networks” that collects and synthesizes large amounts of health information.


PCORI

Methodology Standards

PCORI

Methodology standards for patient-centered research created or endorsed by PCORI's Methodology Committee.


Comparative effectiveness research PCORI

Compensation Framework for Engaged Research Partners

PCORI

This framework provides financial compensation guidelines for research proposals submitted to PCORI, as well as guidance for general planning of...


Comparative effectiveness research PCORI

Patient Engagement Rubric

PCORI

This document summarizes PCORI's model for patient-centered outcomes research, including funding requirements, methods for involving diverse groups of stakeholders in...


Comparative effectiveness research PCORI