Expanding the Science of Patient Input: Pain Points and Potential

FasterCures

The FasterCures workshop highlighted both the growing pains associated with patient-centric research and the amazing potential.


Patient organizations

Unitio Community Application for Research and Engagement (CARE) platform

Unitio

A proprietary real-world patient engagement platform designed to enable peer-to-peer support for people touched by disease while providing them with...


Patient organizations

PatientsLikeMe Health Data-Sharing Platform

PatientsLikeMe

PatientsLikeMe has developed a proprietary online network that includes more than 400,000 people living with more than 2500 conditions, sharing...


Patient organizations

PCORnet: The National Patient-Centered Clinical Research Network

PCORI

Through PCORnet, PCORI has created a “network of networks” that collects and synthesizes large amounts of health information.


PCORI

Natural Histories Patient Registry Platform

NORD

This platform houses several natural history patient registries to help address the unique needs of researchers and stakeholders developing treatments...


Patient organizations

Building Smarter Patient Registries

FasterCures

This report ties together research from interviews, FasterCures’ survey data, background research and data gathered at events, including a “Disruptors’...


Patient organizations