Information Center for Clinical Trial Participation

Center for Information and Study on Clinical Trial Participation (CISCRP)

CISCRP's Education Center provides resources to help individuals learn about clinical research and what it means to be a clinical...

Progress for Patients: Advocacy Education

Friends of Cancer Research

This online training community aims to provide tools to effectively communicate with drug researchers, developers, and regulators.

About Research Participation

U.S. Department of Health & Human Services

Office for Human Research Protections compiled a list of questions for research participants to ask researchers, a series of informational...

Parkinson's Advocates in Research

Parkinson's Disease Foundation

This program connects Parkinson's patients and their care partners with training and opportunities to serve as partners in research alongside...


Patient organizations Training

The A to Z of how medicines are developed

European Patients' Academy on Therapeutic Innovation

These patient education materials provide a broad scope of information on drug development from drug discovery to clinical trials to...


Patient organizations

Recommendations: Patient Engagement Across the Research & Development Continuum

Clinical Trials Transformation Initiative (CTTI)

A comprehensive set of recommendations to guide development of collaborative relationships between sponsors of biomedical research and development and patient organizations.


Patient focused drug development

Working with Regulators: A Focus on CMS

Cancer Support Community

This toolkit provides information about the Centers for Medicare and Medicaid for patient advocacy organizations to build a working knowledge...


Value and coverage Patient organizations

Working with Regulators: A Focus on the FDA

Cancer Support Community

This toolkit provides information about the roles and responsibilities of the FDA, how to access FDA decision makers, and resources...


Patient organizations Patient focused drug development