The FasterCures Track: September 2013 - Finding the right partner at the right time

  Subscribe »

The FasterCures Track

The task at hand – speeding up the time it takes to get new medicines from lab to patients – is daunting. But, it must be done because patients are waiting. We all know that no one can go it alone. But finding the right partner at the right time is equally as daunting.

That's why we created Partnering for Cures. Now in its fifth year, the meeting is designed to allow nontraditional allies to find each other. For example, our partnering system, P4C Connect, is accessible via desktop or mobile device. Registrants can review profiles of other Partnering for Cures participants, schedule one-on-one and group meetings, build your customized Partnering for Cures itinerary and sync it with your calendar of choice, and request free advice sessions with expert consultants. The official meetings and sessions are complemented by impromptu gatherings – from meeting a speaker in the line for coffee or sitting next to someone from a different industry with similar interests at a Therapeutic Affinity Roundtable.

We hope you’ll join us at Partnering for Cures to find 1,000 potential new partners. There is no better place to feel that you’re not alone in your mission.

Margaret's signature

Margaret Anderson
Executive Director

FasterCures logo

FasterCures Program Updates

pictures of Program Updates


dotted line
Collaboration

Our goal: Stimulate innovative collaborations across all sectors - academia, government, industry, investors, and nonprofits - to speed up the time it takes to get new therapies from the lab to patients.

P4C Innovator Presentations focus on cross-sector collaboration
P4C Innovator Presentation logosFasterCures
has announced the innovative, cross-sector collaborations that will present at this year’s Partnering for Cures, to be held Nov. 3-5 in New York. Presentations will focus on a range of issues, including Aeras’ Business Case for Investment in TB Vaccine R&D, Alzheimer’s Drug Discovery Foundation’s ACCESS Program, Carnegie Mellon University and Allegheny Health Network’s Disruptive Health Technology Institute, and the Neurological Clinical Research Institute’s Pooled Resource Open-Access ALS Clinical Trials Platform.

  • Have you registered for P4C yet? Be a part of medical research’s most forward-thinking event.

dotted line
Policy and Process

Our goal: Improve research processes and develop policies that will better support efficient development and approval of new therapies.

Value and Reimbursement Workshop recommendations spell new challenges for stakeholders
Workshop illustrationAt a workshop convened by FasterCures and the Cystic Fibrosis Foundation, a candid discussion focused on defining "value" in reimbursement decisions for lifesaving therapies. More than 50 leaders from across the healthcare and cure enterprises grappled with issues ranging from the evidentiary needs of payers to methods used to capture patient preferences – all toward the goal of protecting innovation in therapy development. A number of recommendations emerged toward a definition of how value is determined and how it translates into reimbursement decisions.

 

Anderson speaks about adjusting to a changing research environment
slide from Margaret Anderson's presentationAt the Association of Independent Research Institutes 52nd Annual Meeting on Sep. 9 in Washington, Margaret Anderson, executive director of FasterCures, spoke about adjusting to a changing research environment, including getting big ideas from small spaces, the venture philanthropy model, and patients as partners.

 

 

 

NIH director says budget cuts put breathtaking science in peril
Francis CollinsNational Institutes of Health (NIH) Director Francis Collins said continued sequestration cuts threaten U.S. leadership in research and could result in a loss of researchers, who now have a less than one in six chance of having their studies funded by the NIH. In an interview on public radio, Collins took questions from the audience, including one that FasterCures sent via Twitter about the value of public support for medical research. "Are we going to expand and flourish or are we going to see this hard-won set of progress slowed down by the fact that there's no resources there to support it?" Collins challenged the audience.

Relevant Resources:


Understanding Benefit-Risk
Patient communities need a framework to collect and analyze data and develop tools to capture benefit-risk information that will be helpful to FDA regulators. FasterCures aims to create this framework and tools for benefit-risk data collection for disease-specific patient organizations, FDA stakeholders, and policymakers. By broadly educating patient communities, this focused effort will connect the dots – externally and within FDA – to minimize duplication, amplify impact, and inform all parties involved.

 

dotted line
Capital

Our goal: Facilitate greater access to and more strategic allocation of capital to support results-driven medical research.

Stevens focuses on financing R&D pipeline at Social Capital Markets Conference
Melissa Steven's presentationOn Sept. 4, Melissa Stevens, deputy executive director of FasterCures, moderated a panel at the Social Capital Markets Conference in San Francisco, “Forging a Pathway to Collaborative Finance in Medical Research.” The panel focused on how to better coordinate donations and investments in medical research in order to create fluid finance pipelines across diseases.

 

 

 

 

dotted line
Patients

Our goal: Increase patient engagement in research.

Kids, DNA, and Genetic Testing
photo of AdamAdam Foye, a New-Jersey sixth grader, has lived much of his life with weak muscles and uncertainty. Although his symptoms match most closely with the rare muscular disorder Centronuclear Myopathy (CNM), his genes tell a different story. Last year, more than 20 teams of international researchers competed to analyze Adam’s genetic sequence in comparison with someone who does not have CNM and translate the results into easily ready and interpretable information for patients, families, and doctors. Read his Time=Lives story.

  • Check out the Time=Lives site to find out what you can do to help make medical research a national priority and read additional stories about the power and promise of medical research to find cures and save lives.

 

Tools you can use

Our content is your content
FasterCures videoFasterCures has debuted a page that collects videos from our events, presentations, and more. You can view videos that focus on patients, collaboration, capital, policy and process, and FasterCures. We invite you to leverage our existing content and help spread our message. It is easy to share each video on Facebook, Twitter, and Google Plus, and you can imbed the videos into your sites.

  • Want to check out past Innovator Presentations? View some of the creative innovations that have been presented over the years at Partnering for Cures.



Until next issue

If you have questions or would like more information about any of the items above, please contact info@fastercures.org.

Stay connected with FasterCures
facebook twitter linkedin tumblr youtube