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The Game-Changing Impact of Empowering Patients with Health Data


We live in a world with copious amounts of data, in which information of all kinds is constantly gathered and accessed for research and analysis. This is especially true in health care, where information about patients is continuously recorded, accessed, and shared for their care, coverage, research, and many other reasons. However, despite the uptick of electronic health records, wearable technology, and online resources, health data remains a hazy topic and an underutilized asset by patients and other stakeholders.

Recent research shows that 41 percent of patients had never viewed their health data – but an overwhelming percentage of those who had said that their data was useful. Many patients want to use their health information but are unsure of what health data is, how to access it, or how the data could serve them.

During this free webinar discussion with thought leaders working in health data, we will confront some of the questions surfacing around this topic, including: What are the roadblocks to patient access of health data? What are the legal protections for patients and their health information? What are patients currently doing with health data, and what do they want to be doing? How can access to health data be the first step in engagement and empowerment in the biomedical R&D system?


  • Taylor Cusher, Associate Director, FasterCures, a center of the Milken Institute
  • Erin Mackay, Associate Director, Health Information Technology Programs, National Partnership for Women & Families
  • Lucia Savage, Chief Privacy & Regulatory Officer, Omada Health, Inc.
  • Tanisha Carino, Executive Director, FasterCures, a center of the Milken Institute (moderator)